The disease-specific clinical trial network for primary ciliary dyskinesia: PCD-CTN

What is it about?

A group of health care providers and researchers within Primary Ciliary Dyskinesia (PCD) has taken a new initiative to form a ‘clinical trial network’, the PCD-CTN, under the umbrella of the European Reference Network – (ERN) LUNG PCD Core. The aim of the PCD-CTN is to implement high quality clinical research in order to facilitate the progress of drugs from clinical trials to the patient. The participating centres fulfil criteria of state-of-the-art care for PCD patients and show commitment to undertake clinical research together. They have expertise and laboratory infrastructure of sensitive tests necessary to evaluate the benefit of a study drug. Together, they will be able to safely carry out clinical trials including large numbers of patients and this is critical to know quickly and reliably if a drug can be of real benefit for the patients.

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