What is it about?
This national survey of people undertaking Indigenous health research in Australia found that despite widespread use of ethical guidelines recommending Indigenous oversight and participation, these things are not being achieved in Indigenous health research today.
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Why is it important?
If Indigenous health research is intended to benefit Indigenous people, how can this be achieved without Indigenous oversight and participation. Arising from this research is an urgent call for organisational action towards centring Indigenous people in Indigenous health research.
Perspectives
After many years of leading Indigenous health research I tired of organisational inaction towards investing in and supporting activities essential for success in this space - especially the time needed for authentic community engagement, participation and oversight of research. In response I wanted to understand whether this experience was mine alone? I feel that the findings provide evidence for challenges that are more systemic and structural in nature. We see that guidelines alone do not translate to action. It is not the guidelines that I am critical of - it is the lack of organisational accountability to implementing even the basic requirements for achieving ethical Indigenous health research in Australia - Indigenous oversight and participation of Indigenous health research.
Luke Burchill
University of Melbourne
Read the Original
This page is a summary of: Ethics guidelines use and Indigenous governance and participation in Aboriginal and Torres Strait Islander health research: a national survey, The Medical Journal of Australia, October 2022, Wiley,
DOI: 10.5694/mja2.51757.
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