Increasing the Value of Real-World Crowdsourcing Health Data with e-MetaBio, a Novel Patient-Centric IT Infrastructure

What is it about?

Digital health and evolutionary medicine create new insights of mediation and health treatment plan support, introducing innovative platforms, that collects data from the crowd (crowdsourcing), including patients’ real world data records (i.e., lifestyle, socio-economical, health-related, physical, psychological, etc.), so as to improve the current healthcare management system. Within the scope of its activities Metabio’s team has developed an interoperable unified method and technology for crowd-generated databases, creating a user-friendly platform for data collection, processing and distribution among stakeholders within the global healthcare system in real-time. In this paper we describe standard methodologies, requirements, issues and challenges for the design and deployment of an advanced IT infrastructure for longitudinal structured patients-related data records, putting the patient at the center of the entire value chain of all processes. Based on this patient-centric model of operation, a Dynamic Real-Time Tiered e-consent module and Digital Rights Management protocols are introduced, enabling the patients with the ability to monitor and manage their disease-related conditions, as well as the healthcare providers and / or research entities to have access to valuable biomedical patients’ data, not recorded so far. The project introduces novel perspectives for future evidence-based practices, promoting research and development and improving current healthcare systems.

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