What is it about?
The most pathetic part of this disease is that even medical personnel are sometimes not familiar with its diagnosis and management. Hemophilia, if not properly managed, can lead to chronic disease and lifelong disabilities. The challenges and issues in infants/young children are different from those in older children and adults although episodes of bleeding still predominate as the diagnostic trigger.
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Why is it important?
Hemophilia is the most common serious congenital coagulation factor deficiencies. The most pathetic part of this disease is that even medical personnel are sometimes not familiar with its diagnosis and management. There is obviously a need to establish facilities and treatment options that will help the patient with hemophilia to manage their life with ease. As this is a genetic disorder no complete cure is possible as of now. Hemophilia, if not properly managed, can lead to chronic disease and lifelong disabilities. The challenges and issues in infants/young children are different from those in older children and adults although episodes of bleeding still predominate as the diagnostic trigger. Currently, inhibitor development is a challenging complication of pediatric hemophilia and prophylaxis is emerging as the optimal preventive care strategy.
Perspectives
Writing this article was a great pleasure as it has co-authors with whom I have had long standing collaborations. This article also lead to disease groups contacting me and ultimately to a greater involvement in disease research.
Professor shahnoor islam
Dhaka Medical College and Hospital
Read the Original
This page is a summary of: Hemophilia in Children, Journal of Paediatric Surgeons of Bangladesh, May 2016, Bangladesh Journals Online (BanglaJOL),
DOI: 10.3329/jpsb.v6i2.27750.
You can read the full text:
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