What is it about?
Every person with diabetes has a unique profile. During their journey of living with diabetes, patients and their care teams need timely and personalized information to make decisions in order to protect their health. By using a team approach, assisted by communication and information technology, we can gather data systematically and use data to transform delivery of diabetes care to save lives and money.
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Why is it important?
People with diabetes need lifelong monitoring, support and care. Our investments in creating knowledge and solutions in diabetes are not translated fast enough to benefit the population at large. By setting up diabetes centres and diabetes teams, we can establish diabetes registers and use data to empower self management and avoid delayed intervention. The multi-purpose Hong Kong Diabetes Register set up in 1995 evolved to become a territory-wide risk assessment and management program in 2000 which benefited 0.8 million people with diabetes accompanied by 50-70% decline in death rate in 2000-2016. By digitalizing the protocol, we created the JADE Register to gather data from Asia to promote sharing of best practices.
Perspectives
Type 2 diabetes is a Cinderella subject, important but not urgent, despite the vulnerability of affected individuals especially during time of emergency. Supported by a nurse and a protocol, the low death/event rates amongst clinical trial participants has taught me the importance of setting and support in order to translate my knowledge to good care. By combining research and practice, we set up cohorts, databases and biobanks to unravel the complexity of diabetes, notably young onset diabetes. By using a team approach assisted by information technology, we can improve the efficiency of data management to stratify risk, personalize care, empower decisions and discover knowledge. No data, no action! Whether you are a patient, care provider or payor, I hope you will find this story relevant to your personal experience.
Professor Juliana CN Chan
Chinese University of Hong Kong
Read the Original
This page is a summary of: From Hong Kong Diabetes Register to JADE Program to RAMP-DM for Data-Driven Actions, Diabetes Care, September 2019, American Diabetes Association,
DOI: 10.2337/dci19-0003.
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