What is it about?
Pheochromocytoma is a rare hormone disease, which is relatively easy to treat but notoriously difficult for doctors to diagnose. It can be fatal unless found and operated. We identified 588 patients diagnosed with pheochromocytoma from 1977 to 2016 in Denmark using public health registries and algorithms.
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Why is it important?
We have found the -as of yet- largest group of pheochromocytoma patients ever identified in a population. This unique patient group can facilitate future research projects, hopefully improving our understanding and enabling faster diagnosis of this rare but dangerous disease
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This page is a summary of: Pheochromocytoma in Denmark during 1977–2016: validating diagnosis codes and creating a national cohort using patterns of health registrations, Clinical Epidemiology, June 2018, Dove Medical Press,
DOI: 10.2147/clep.s163065.
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