Publication
National rare diseases registry in Spain: pilot study of the Spanish Rare Diseases Registries Research Network (SpainRDR)
Verónica Alonso, Ignacio Abaitua, Óscar Zurriaga, Jenaro Astray, Manuel Errezola, Josefa M Aldana-Espinal, Mario J Margolles, Josep Jiménez, Joaquín A Palomar, Milagrosa Santana, Enrique Ramalle-Gomarra, Julián M Ramos, Federico E Arribas, Rufino Álamo, Gonzalo Gutiérrez-Ávila, Antònia Galmés, Miguel García-Ribes, Carmen Navarro, Eva Ardanaz, Manuel de la Paz
Orphanet Journal of Rare Diseases, January 2014, Springer Science + Business Media
DOI: 10.1186/1750-1172-9-s1-p5