All Stories

  1. Cross-cultural validation of the Refusal of Care Informant Scale (RoCIS) for older adults with dementia in the European Portuguese population

    Article • Aging & Mental Health, February 2026, Taylor & Francis

    Dr Tamara Backhouse

  2. How Can We Improve Personal Care Interactions to Reduce Care Refusals From People With Dementia? A Realist Synthesis

    Article • Journal of Advanced Nursing, September 2025, Wiley

    Dr Tamara Backhouse

  3. Spiritual Support for People Affected by Dementia: A Scoping Review

    Article • Dementia, September 2025, SAGE Publications

    Dr Tamara Backhouse

  4. Principles and Strategies of Interviewing People with Advanced Dementia

    Article • Dementia, August 2025, SAGE Publications

    Dr Tamara Backhouse

  5. Widening the scope of social science research on the dementias: the importance of Lewy Body Dementia

    Article • Wellcome Open Research, July 2025, Faculty of 1000, Ltd.

    Dr Tamara Backhouse, Susan Van Hees

  6. Strategies to support safe wandering in care homes for older adults – what works, for whom, and in which circumstances?: A realist synthesis

    Article • July 2025, Cold Spring Harbor Laboratory Press

    Dr Tamara Backhouse

  7. Research collaboration with care home residents: a systematic review of public involvement approaches

    Article • Research Involvement and Engagement, May 2025, Springer Science + Business Media

    Dr Tamara Backhouse

  8. Frequency of care mediates the effect of older adults’ cognitive performance on the perceived strain of their informal caregivers in a middle-income country

    Article • Dementia, May 2025, SAGE Publications

    Dr Tamara Backhouse, Dr Marcia R Cominetti

  9. Does carer psychological inflexibility moderate the relationship between Motor Neurone Disease symptomatology and carer anticipatory grief emotions?

    Article • Journal of Health Psychology, March 2025, SAGE Publications

    Dr Tamara Backhouse

  10. Enhanced recovery pathway for older people with hip fracture and cognitive impairment in acute hospitals: the PERFECTED research programme including an RCT

    Article • Programme Grants for Applied Research, February 2025, National Institute for Health Research

    Ms Bridget L Penhale, Dr Tamara Backhouse

  11. Factors associated with care‐resistant behavior in the National Alzheimer's Coordinating Center's Uniform Data Set

    Article • Alzheimer s & Dementia, December 2024, Wiley

    Dr Tamara Backhouse

  12. Navigating an emotional journey: A qualitative study of the emotional experiences of family carers currently supporting people living with motor neurone disease – CORRIGENDUM

    Article • Palliative & Supportive Care, October 2024, Cambridge University Press

    Dr Tamara Backhouse

  13. How do family carers assist people with dementia? A qualitative observation study of daily tasks

    Article • British Journal of Occupational Therapy, August 2024, SAGE Publications

    Dr Tamara Backhouse

  14. Reducing refusals of care through improved personal care interactions between caregivers and people with dementia: protocol for a realist synthesis

    Article • BMJ Open, August 2024, BMJ

    Dr Tamara Backhouse

  15. Describing and assessing behavioural symptoms in amyotrophic lateral sclerosis with and without frontotemporal dementia: a scoping review

    Article • Current Opinion in Neurology, July 2024, Wolters Kluwer Health

    Dr Tamara Backhouse

  16. Factors affecting anticipatory grief of family carers supporting people living with Motor Neurone disease: the impact of disease symptomatology

    Article • Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, May 2024, Taylor & Francis

    Dr Tamara Backhouse

  17. Nurturing Attentiveness: A Naturalistic Observation Study of Personal Care Interactions Between People With Advanced Dementia and Their Caregivers

    Article • The Gerontologist, January 2024, Oxford University Press (OUP)

    Dr Tamara Backhouse

  18. Is Carer Management Style Associated with Longitudinal Functional Decline in Dementia?

    Article • Journal of Alzheimer’s Disease, November 2023, IOS Press

    Dr Tamara Backhouse

  19. Navigating an emotional journey: A qualitative study of the emotional experiences of family carers currently supporting people living with motor neurone disease

    Article • Palliative & Supportive Care, November 2023, Cambridge University Press

    Dr Tamara Backhouse

  20. Individual Differences in the Patient Experience of Relapsing Multiple Sclerosis (RMS): A Multi-Country Qualitative Exploration of Drivers of Treatment Preferences Among People Living with RMS

    Article • The Patient Patient-Centered Outcomes Research, April 2023, Springer Science + Business Media

    Dr Tamara Backhouse

  21. Factors associated with grief in informal carers of people living with Motor Neuron Disease: A mixed methods systematic review

    Article • Death Studies, March 2023, Taylor & Francis

    Dr Tamara Backhouse

  22. Implementing PERFECT-ER with Plan-Do-Study-Act on acute orthopaedic hospital wards: Building knowledge from an implementation study using Normalization Process Theory

    Article • PLOS One, February 2023, PLOS

    Ms Bridget L Penhale, Dr Tamara Backhouse

  23. Implementing an intervention to enhance care delivery and consistency for people with hip fracture and cognitive impairment in acute hospital wards: a mixed methods process evaluation of a randomised controlled feasibility trial (PERFECTED)

    Article • BMJ Open, February 2023, BMJ

    Ms Bridget L Penhale, Dr Tamara Backhouse

  24. What are the factors associated with people with advanced dementia refusing assistance with personal care?

    Article • International Journal of Geriatric Psychiatry, December 2022, Wiley

    Dr Tamara Backhouse

  25. Disjunctures in practice: ethnographic observations of orthopaedic ward practices in the care of older adults with hip fracture and presumed cognitive impairment

    Article • Ageing and Society, October 2022, Cambridge University Press

    Ms Bridget L Penhale, Dr Tamara Backhouse

  26. How do family carers and care-home staff manage refusals when assisting a person with advanced dementia with their personal care?

    Article • Dementia, September 2022, SAGE Publications

    Dr Tamara Backhouse

  27. Contributions of Caregiver Management Styles to the Discrepancy Between Reported and Observed Task Performance in People with Dementia

    Article • Journal of Alzheimer’s Disease, August 2022, IOS Press

    Dr Tamara Backhouse

  28. Risks and risk mitigation in homecare for people with dementia—A two‐sided matter: A systematic review

    Article • Health & Social Care in the Community, June 2022, Wiley

    Dr Tamara Backhouse

  29. Caring for people with dementia in their own homes: homecare workers' experiences of tolerating and mitigating risk

    Article • Ageing and Society, June 2022, Cambridge University Press

    Dr Tamara Backhouse

  30. Most Common Refusals of Personal Care in Advanced Dementia: Psychometric Properties of the Refusal of Care Informant Scale

    Article • The Gerontologist, May 2022, Oxford University Press (OUP)

    Dr Tamara Backhouse

  31. Care Home and Home Care Staff’s Learning during the COVID-19 Pandemic and Beliefs about Subsequent Changes in the Future: A Survey Study in Sweden, Italy, Germany and the United Kingdom

    Article • Healthcare, February 2022, MDPI AG

    Dr Tamara Backhouse

  32. PERFECTED enhanced recovery pathway (PERFECT-ER) versus standard acute hospital care for people after hip fracture surgery who have cognitive impairment: a feasibility cluster randomised controlled trial

    Article • BMJ Open, February 2022, BMJ

    Ms Bridget L Penhale, Dr Tamara Backhouse

  33. “Acting ethically is down to you” applying ethical protocols in qualitative fieldwork in care homes

    Article • Quality of Ageing, November 2021, Emerald

    Dr Tamara Backhouse

  34. Organizational Support Experiences of Care Home and Home Care Staff in Sweden, Italy, Germany and the United Kingdom during the COVID-19 Pandemic

    Article • Healthcare, June 2021, MDPI AG

    Dr Tamara Backhouse

  35. Home‐care workers' experiences of assisting people with dementia with their personal care: A qualitative interview study

    Article • Health & Social Care in the Community, May 2021, Wiley

    Dr Tamara Backhouse

  36. Understanding and reducing refusals of personal care in dementia

    Article • Nursing and Residential Care, March 2021, Mark Allen Group

    Dr Tamara Backhouse

  37. Producing ‘Top Tips’ for Care Home Staff During the COVID-19 Pandemic in England: Rapid Reviews Inform Evidence-Based Practice but Reveal Major Gaps

    Article • Journal of Long-Term Care, October 2020, LSE Press

    Dr Tamara Backhouse

  38. Challenges in dementia care: comparing key issues from Brazil and the United Kingdom

    Article • Dementia & Neuropsychologia, September 2020, FapUNIFESP (SciELO)

    Dr Tamara Backhouse

  39. Strategies and interventions to reduce or manage refusals in personal care in dementia: a systematic review

    Article • International Journal of Nursing Studies, May 2020, Elsevier

    Dr Tamara Backhouse

  40. Making body work sequences visible: an ethnographic study of acute orthopaedic hospital wards

    Article • Sociology of Health & Illness, April 2020, Wiley

    Dr Tamara Backhouse, Ms Bridget L Penhale

  41. P4-622: DEMENTIA HOSPITAL CARE RESEARCH PROGRAMME: PERI-OPERATIVE ENHANCED RECOVERY HIP FRACTURE CARE OF PATIENTS WITH DEMENTIA (PERFECTED)-CLUSTER RANDOMISED CONTROL TRIAL RESULTS

    Article • Alzheimer s & Dementia, July 2019, Wiley

    Ms Bridget L Penhale, Dr Tamara Backhouse

  42. P4-386: PERI-OPERATIVE ENHANCED RECOVERY HIP FRACTURE CARE OF PATIENTS WITH DEMENTIA (PERFECTED): RCT RESULTS

    Article • Alzheimer s & Dementia, July 2019, Wiley

    Ms Bridget L Penhale, Dr Tamara Backhouse

  43. Nonpharmacological Interventions to Improve Depression, Anxiety, and Quality of Life (QoL) in People With Dementia: An Overview of Systematic Reviews

    Article • Journal of Geriatric Psychiatry and Neurology, June 2019, SAGE Publications

    Dr Tamara Backhouse

  44. How to Handle Later Life

    Article • Quality of Ageing, April 2019, Emerald

    Dr Tamara Backhouse

  45. DISRUPTIONS, DISCONTINUITIES AND DISPERSIONS: ETHNOGRAPHIC FINDINGS ON DISJUNCTURES IN ORGANISING ORTHOPAEDIC WARD PRACTICES IN DEMENTIA CARE

    Article • Alzheimer s & Dementia, July 2018, Elsevier

    Dr Tamara Backhouse

  46. What Do We Know About Behavioral Crises in Dementia? A Systematic Review

    Article • Journal of Alzheimer’s Disease, February 2018, IOS Press

    Dr Tamara Backhouse

  47. PERFECTED enhanced recovery (PERFECT-ER) care versus standard acute care for patients admitted to acute settings with hip fracture identified as experiencing confusion: study protocol for a feasibility cluster randomized controlled trial

    Article • Trials, December 2017, Springer Science + Business Media

    Dr Tamara Backhouse, Ms Bridget L Penhale

  48. Coping with risk and impact from dementia-related behaviours

    Article • Ageing and Society, April 2017, Cambridge University Press

    Dr Tamara Backhouse, Ms Bridget L Penhale, Professor Richard John Gray

  49. The use of non-pharmacological interventions for dementia behaviours in care homes: findings from four in-depth, ethnographic case studies

    Article • Age and Ageing, August 2016, Oxford University Press (OUP)

    Dr Tamara Backhouse, Ms Bridget L Penhale, Professor Richard John Gray

  50. Older care-home residents as collaborators or advisors in research: a systematic review

    Article • Age and Ageing, January 2016, Oxford University Press (OUP)

    Dr Tamara Backhouse, Ms Bridget L Penhale

  51. Behavioural and psychological symptoms of dementia and their management in care homes within the East of England: a postal survey

    Article • Aging & Mental Health, July 2013, Taylor & Francis

    Professor Richard John Gray, Dr Diane Burns, Dr Tamara Backhouse, Ms Bridget L Penhale