All Stories

  1. Reproductive autonomy in expanded carrier screening: more than meets the eye?

    Article • Expert Review of Molecular Diagnostics, November 2018, Taylor & Francis

    Pascal Borry

  2. How do consent forms for diagnostic high-throughput sequencing address unsolicited and secondary findings? A content analysis

    Article • Clinical Genetics, July 2018, Wiley

    Pascal Borry

  3. Do athletes have a right to access data in their Athlete Biological Passport?

    Article • Drug Testing and Analysis, April 2018, Wiley

    Pascal Borry, Maddalena Favaretto

  4. Reporting practices for unsolicited and secondary findings from next-generation sequencing technologies: Perspectives of laboratory personnel

    Article • Human Mutation, June 2017, Wiley

    Pascal Borry

  5. Designing expanded carrier screening panels: results of a qualitative study with European geneticists

    Article • Personalized Medicine, November 2016, Future Medicine

    Pascal Borry

  6. Attitudes of European Geneticists Regarding Expanded Carrier Screening

    Article • Journal of Obstetric Gynecologic & Neonatal Nursing, November 2016, Elsevier

    Pascal Borry

  7. Content Analysis of Informed Consent for Whole Genome Sequencing Offered by Direct-to-Consumer Genetic Testing Companies

    Article • Human Mutation, October 2016, Wiley

    Pascal Borry

  8. Ethical considerations for genetic testing in the context of mandated cardiac screening before athletic participation

    Article • Genetics in Medicine, September 2016, Nature

    Pascal Borry

  9. Participation of Children in Medical Decision-Making: Challenges and Potential Solutions

    Article • Journal of Bioethical Inquiry, September 2016, Springer Science + Business Media

    Pascal Borry

  10. Biohistorical materials and contemporary privacy concerns-the forensic case of King Albert I

    Article • Forensic Science International Genetics, September 2016, Elsevier

    Pascal Borry

  11. Who should have access to genomic data and how should they be held accountable? Perspectives of Data Access Committee members and experts

    Article • European Journal of Human Genetics, August 2016, Nature

    Pascal Borry

  12. Living Organ Donation by Minors: An Analysis of the Regulations in European Union Member States

    Article • American Journal of Transplantation, July 2016, Wiley

    Pascal Borry

  13. Legal approaches regarding health-care decisions involving minors: implications for next-generation sequencing

    Article • European Journal of Human Genetics, June 2016, Nature

    Pascal Borry

  14. Do It Yourself Newborn Screening

    Article • JAMA Pediatrics, June 2016, American Medical Association (AMA)

    Pascal Borry

  15. Genetics Testing and Screening

    Article • April 2016, Wiley

    Pascal Borry

  16. Responsible implementation of expanded carrier screening

    Article • European Journal of Human Genetics, March 2016, Nature

    Pascal Borry

  17. “You want the right amount of oversight”: interviews with data access committee members and experts on genomic data access

    Article • Genetics in Medicine, January 2016, Nature

    Pascal Borry

  18. Genomic Databases, Access Review, and Data Access Committees

    Article • January 2016, Elsevier

    Pascal Borry

  19. Controlled Access under Review: Improving the Governance of Genomic Data Access

    Article • PLoS Biology, December 2015, PLOS

    Pascal Borry

  20. Marginally scientific? Genetic testing of children and adolescents for lifestyle and health promotion

    Article • Journal of Law and the Biosciences, November 2015, Oxford University Press (OUP)

    Pascal Borry

  21. Crowdsourced direct-to-consumer genomic analysis of a family quartet

    Article • BMC Genomics, November 2015, Springer Science + Business Media

    Pascal Borry

  22. Non-invasive prenatal testing for aneuploidy and beyond: challenges of responsible innovation in prenatal screening

    Article • European Journal of Human Genetics, October 2015, Nature

    Pascal Borry

  23. Genome-based newborn screening: a conceptual analysis of the best interests of the child standard

    Article • Personalized Medicine, September 2015, Future Medicine

    Pascal Borry

  24. “You hoped we would sleep walk into accepting the collection of our data”: controversies surrounding the UK care.data scheme and their wider relevance for biomedical research

    Article • Medicine Health Care and Philosophy, August 2015, Springer Science + Business Media

    Pascal Borry

  25. Is an Absolute Prohibition of Living Kidney Donation by Minors Appropriate? A Discussion of the Arguments in Favor and Against

    Article • August 2015, Springer Science + Business Media

    Pascal Borry

  26. Attitudes of cystic fibrosis patients and parents toward carrier screening and related reproductive issues

    Article • European Journal of Human Genetics, July 2015, Nature

    Pascal Borry

  27. Non-invasive prenatal testing for aneuploidy and beyond: challenges of responsible innovation in prenatal screening. Summary and recommendations

    Article • European Journal of Human Genetics, April 2015, Nature

    Pascal Borry

  28. Challenges of web-based personal genomic data sharing

    Article • Life Sciences Society and Policy, March 2015, Springer Science + Business Media

    Pascal Borry

  29. Non-invasive prenatal testing for aneuploidy and beyond: challenges of responsible innovation in prenatal screening

    Article • European Journal of Human Genetics, March 2015, Nature

    Pascal Borry

  30. Attitudes of cystic fibrosis patients and their parents towards direct-to-consumer genetic testing for carrier status

    Article • Personalized Medicine, March 2015, Future Medicine

    Pascal Borry

  31. Whole-genome sequencing in newborn screening? A statement on the continued importance of targeted approaches in newborn screening programmes

    Article • European Journal of Human Genetics, January 2015, Nature

    Pascal Borry

  32. Current Ethical Issues Related to the Implementation of Whole-Exome and Whole-Genome Sequencing

    Article • January 2015, Springer Science + Business Media

    Pascal Borry

  33. Psychosocial impact of pediatric living-donor kidney and liver transplantation on recipients, donors, and the family: a systematic review

    Article • Transplant International, November 2014, Wiley

    Pascal Borry

  34. Attitudes of research participants and the general public towards genomic data sharing: a systematic literature review

    Article • Expert Review of Molecular Diagnostics, September 2014, Taylor & Francis

    Pascal Borry

  35. Points to consider for prioritizing clinical genetic testing services: a European consensus process oriented at accountability for reasonableness

    Article • European Journal of Human Genetics, September 2014, Nature

    Pascal Borry, Jorge Sequeiros

  36. Direct-to-Consumer Genetic Testing

    Article • September 2014, Wiley

    Pascal Borry

  37. Newspaper coverage of biobanks

    Article • PeerJ, July 2014, PeerJ

    Pascal Borry

  38. Talent in sports. Some reflections about the search for future champions

    Article • Movement & Sport Sciences - Science & Motricité, May 2014, EDP Sciences

    Pascal Borry

  39. Is There a Right Time to Know?: The Right Not to Know and Genetic Testing in Children

    Article • The Journal of Law Medicine & Ethics, April 2014, SAGE Publications

    Pascal Borry

  40. Whole-Genome Sequencing in Newborn Screening Programs

    Article • Science Translational Medicine, March 2014, American Association for the Advancement of Science

    Pascal Borry

  41. Anonymity 2.0: direct-to-consumer genetic testing and donor conception

    Article • Fertility and Sterility, March 2014, Elsevier

    Pascal Borry

  42. Industry involvement in publicly funded biobanks

    Article • Nature Reviews Genetics, February 2014, Nature

    Pascal Borry

  43. Reflections on the Cost of "Low-Cost" Whole Genome Sequencing: Framing the Health Policy Debate

    Article • PLoS Biology, November 2013, PLOS

    Pascal Borry

  44. Current issues in medically assisted reproduction and genetics in Europe: research, clinical practice, ethics, legal issues and policyEuropean Society of Human Genetics and European Society of Human Reproduction and Embryology

    Article • European Journal of Human Genetics, November 2013, Nature

    Pascal Borry, Jorge Sequeiros

  45. “I prefer a child with …”: designer babies, another controversial patent in the arena of direct-to-consumer genomics

    Article • Genetics in Medicine, October 2013, Nature

    Pascal Borry

  46. “It’s our DNA, we deserve the right to test!” A content analysis of a petition for the right to access direct-to-consumer genetic testing

    Article • Personalized Medicine, September 2013, Future Medicine

    Pascal Borry

  47. Reflecting on Earlier Experiences with Unsolicited Findings: Points to Consider for Next‐Generation Sequencing and Informed Consent in Diagnostics

    Article • Human Mutation, July 2013, Wiley

    Pascal Borry

  48. Whole-genome sequencing in health care

    Article • European Journal of Human Genetics, June 2013, Nature

    Pascal Borry

  49. Direct-to-consumer genetic testing — where should we focus the policy debate?

    Article • The Medical Journal of Australia, May 2013, Australasian Medical Publishing Co. Pty Ltd. (AMPCo)

    Pascal Borry

  50. Nonpropositional Content in Direct-to-Consumer Genetic Testing Advertisements

    Article • The American Journal of Bioethics, May 2013, Taylor & Francis

    Pascal Borry

  51. Genetic testing: Anonymity of sperm donors under threat

    Article • Nature, April 2013, Nature

    Pascal Borry

  52. Could minors be living kidney donors? A systematic review of guidelines, position papers and reports

    Article • Transplant International, April 2013, Wiley

    Pascal Borry

  53. Direct-to-Consumer Genetic Testing Services: Policies and Challenges

    Article • January 2013, Springer Science + Business Media

    Pascal Borry

  54. Survey of European clinical geneticists on awareness, experiences and attitudes towards direct-to-consumer genetic testing

    Article • Genome Medicine, January 2013, Springer Science + Business Media

    Pascal Borry

  55. Why do participants enroll in population biobank studies? A systematic literature review

    Article • Expert Review of Molecular Diagnostics, January 2013, Informa Healthcare

    Pascal Borry

  56. “Trust is not something you can reclaim easily”: patenting in the field of direct-to-consumer genetic testing

    Article • Genetics in Medicine, November 2012, Nature

    Pascal Borry

  57. Debating the clinical utility of direct-to-consumer genetic testing for addiction susceptibility

    Article • Addiction, November 2012, Wiley

    Pascal Borry

  58. The challenge of implementing genetic tests with clinical utility while avoiding unsound applications

    Article • Journal of Community Genetics, October 2012, Springer Science + Business Media

    Pascal Borry

  59. To ban or not to ban?

    Article • EMBO Reports, September 2012, EMBO

    Pascal Borry

  60. To ban or not to ban?

    Article • EMBO Reports, August 2012, EMBO

    Pascal Borry

  61. Developing a policy for paediatric biobanks: principles for good practice

    Article • European Journal of Human Genetics, June 2012, Nature

    Professor Aad Tibben, Pascal Borry, Jorge Sequeiros

  62. Direct-to-consumer genetic testing: regulating offer or use?

    Article • Personalized Medicine, May 2012, Future Medicine

    Pascal Borry

  63. The changing landscape of genetic testing and its impact on clinical and laboratory services and research in Europe

    Article • European Journal of Human Genetics, March 2012, Nature

    Pascal Borry

  64. Medical Ethics, Use of Empirical Evidence in

    Article • January 2012, Elsevier

    Pascal Borry

  65. Europe and direct-to-consumer genetic tests

    Article • Nature Reviews Genetics, December 2011, Nature

    Pascal Borry

  66. Direct-to-consumer pharmacogenomic testing

    Article • Pharmacogenomics, October 2011, Future Medicine

    Pascal Borry

  67. Is there a doctor in the house?

    Article • Journal of Community Genetics, September 2011, Springer Science + Business Media

    Pascal Borry

  68. Closure of population biobanks and direct-to-consumer genetic testing companies

    Article • Human Genetics, June 2011, Springer Science + Business Media

    Pascal Borry

  69. Are the kids really all right? Direct-to-consumer genetic testing in children: are company policies clashing with professional norms?

    Article • European Journal of Human Genetics, June 2011, Nature

    Pascal Borry

  70. Users’ motivations to purchase direct-to-consumer genome-wide testing: an exploratory study of personal stories

    Article • Journal of Community Genetics, May 2011, Springer Science + Business Media

    Pascal Borry

  71. Genetic testing and common disorders in a public health framework: how to assess relevance and possibilities

    Article • European Journal of Human Genetics, April 2011, Nature

    Pascal Borry, Jorge Sequeiros

  72. International survey on attitudes toward ethics in health technology assessment: An exploratory study

    Article • International Journal of Technology Assessment in Health Care, January 2011, Cambridge University Press

    Pascal Borry

  73. Where are you going, where have you been: a recent history of the direct-to-consumer genetic testing market

    Article • Journal of Community Genetics, September 2010, Springer Science + Business Media

    Pascal Borry

  74. Blurring lines

    Article • EMBO Reports, July 2010, EMBO

    Pascal Borry

  75. Empirical Ethics

    Article • Ethical Perspectives, June 2010, Peeters Publishers

    Pascal Borry

  76. Italian appeal court: a genetic predisposition to commit murder?

    Article • European Journal of Human Genetics, March 2010, Nature

    Professor Aad Tibben, Pascal Borry

  77. Conference Scene: Direct-to-consumer genetic testing in the age of personalized medicine

    Article • Personalized Medicine, November 2009, Future Medicine

    Pascal Borry

  78. The expansion of newborn screening: is reproductive benefit an appropriate pursuit?

    Article • Nature Reviews Genetics, October 2009, Nature

    Pascal Borry

  79. Personal Genome Testing: Do You Know What You Are Buying?

    Article • The American Journal of Bioethics, June 2009, Taylor & Francis

    Pascal Borry

  80. Health-related direct-to-consumer genetic testing: a review of companies’ policies with regard to genetic testing in minors

    Article • Familial Cancer, June 2009, Springer Science + Business Media

    Pascal Borry

  81. ‘NOBODY TOSSES A DWARF!’ THE RELATION BETWEEN THE EMPIRICAL AND THE NORMATIVE REEXAMINED

    Article • Bioethics, May 2009, Wiley

    Pascal Borry

  82. Genetic testing in asymptomatic minorsBackground considerations towards ESHG Recommendations

    Article • European Journal of Human Genetics, March 2009, Nature

    Pascal Borry, Jorge Sequeiros

  83. Examining the role of informal interpretation in medical interviews

    Article • Journal of Medical Ethics, March 2009, BMJ

    Pascal Borry

  84. Coming of age of personalized medicine: challenges ahead

    Article • Genome Medicine, January 2009, Springer Science + Business Media

    Pascal Borry

  85. Direct-to-consumer genome scanning services. Also for children?

    Article • Nature Reviews Genetics, January 2009, Nature

    Pascal Borry

  86. Letter to the Editor

    Article • Personalized Medicine, September 2008, Future Medicine

    Pascal Borry

  87. DTC Genetic Services: A Look Across the Pond

    Article • The American Journal of Bioethics, August 2008, Taylor & Francis

    Pascal Borry

  88. Direct-to-consumer genetic testing: more questions than benefits?

    Article • Personalized Medicine, July 2008, Future Medicine

    Pascal Borry

  89. Europe to ban direct-to-consumer genetic tests?

    Article • Nature Biotechnology, July 2008, Nature

    Pascal Borry

  90. Predictive genetic testing in minors for adult-onset genetic diseases

    Article • Mount Sinai Journal of Medicine A Journal of Translational and Personalized Medicine, June 2008, Wiley

    Pascal Borry

  91. Why eight EU Member States signed, but not yet ratified the Convention for Human Rights and Biomedicine

    Article • Health Policy, May 2008, Elsevier

    Pascal Borry

  92. A proposal for a model of informed consent for the collection, storage and use of biological materials for research purposes

    Article • Patient Education and Counseling, April 2008, Elsevier

    Pascal Borry

  93. What are the limits of the duty of care? The case of clinical genetics

    Article • Personalized Medicine, March 2008, Future Medicine

    Pascal Borry

  94. The origin and emergence of empirical ethics

    Article • February 2008, Oxford University Press (OUP)

    Pascal Borry

  95. Attitudes regarding predictive genetic testing in minors: A survey of European clinical geneticists

    Article • American Journal of Medical Genetics Part C Seminars in Medical Genetics, January 2008, Wiley

    Pascal Borry

  96. Attitudes towards predictive genetic testing in minors for familial breast cancer: A systematic review

    Article • Critical Reviews in Oncology/Hematology, December 2007, Elsevier

    Pascal Borry

  97. Carrier screening: look before you leap: Carrier screening for type 1 Gaucher disease: difficult questions

    Article • European Journal of Human Genetics, November 2007, Nature

    Pascal Borry

  98. Carrier testing in minors: conflicting views

    Article • Nature Reviews Genetics, November 2007, Nature

    Pascal Borry

  99. Patient rights in EU Member States after the ratification of the Convention on Human Rights and Biomedicine

    Article • Health Policy, October 2007, Elsevier

    Pascal Borry

  100. Attitudes regarding carrier testing in incompetent children: a survey of European clinical geneticists

    Article • European Journal of Human Genetics, August 2007, Nature

    Pascal Borry

  101. Minors and Informed Consent: A Comparative Approach

    Article • European Journal of Health Law, January 2007, Brill

    Pascal Borry

  102. AUTHOR, CONTRIBUTOR OR JUST A SIGNER? A QUANTITATIVE ANALYSIS OF AUTHORSHIP TRENDS IN THE FIELD OF BIOETHICS

    Article • Bioethics, August 2006, Wiley

    Pascal Borry

  103. Evidence-based medicine and its role in ethical decision-making

    Article • Journal of Evaluation in Clinical Practice, May 2006, Wiley

    Pascal Borry

  104. Predictief genetisch testen bij kinderen: een klinisch-ethische analyse

    Article • Tijdschrift voor Geneeskunde, January 2006, Peeters Publishers

    Pascal Borry

  105. Carrier testing in minors: a systematic review of guidelines and position papers

    Article • European Journal of Human Genetics, November 2005, Nature

    Pascal Borry

  106. Developing Countries and Bioethical Research

    Article • New England Journal of Medicine, August 2005, New England Journal of Medicine (NEJM/MMS)

    Pascal Borry

  107. THE BIRTH OF THE EMPIRICAL TURN IN BIOETHICS

    Article • Bioethics, February 2005, Wiley

    Pascal Borry

  108. De empirische wending in de bio-ethiek

    Article • Ethische Perspectieven, March 2004, Peeters Publishers

    Pascal Borry

  109. What is the role of empirical research in bioethical reflection and decision-making? An ethical analysis

    Article • Medicine Health Care and Philosophy, January 2004, Springer Science + Business Media

    Pascal Borry

  110. Internationale Conferentie «Between Facts and Norms, Empirical Methods in Bioethics»

    Article • Ethische Perspectieven, June 2002, Peeters Publishers

    Pascal Borry